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May All The People Who Have Been Diagnosed With Cataplexy Be Blessed With A Cure

by Joanne Petti
(Cortlandt Manor, NY)

Im the mother of my amazing daughter Jennifer, who at 25 one day in August...after living a year and a half in NYC on her own to be closer to work...we asked her "How are you doing here in the city....and she replied, "Oh...I am so happy with my life"...Less than a month later, one day in August 2012, she was complaiing how fatigued she was feeling at work...and she was not sleeping well and having bad nightmeres....

We assumed she was just under emotional stress, after all there were no other symptons leading up to this. She was healthy... And one day she was not....

After seeing a few Dr's and telling her she is suffering from acute stress.....She called us one weekend to tell us she lost feeling in her left side....We took her to the emergency room..And after all her tests came back normal we were told to take her to a neurologist....I quickly made an appointment..The sheer panic i felt was so indescribable....To even go there and think there might be something wrong with my child....After seeing her hooked up to wires..And be put through the variety of tests...She was diagnosed with cataplexy...And put on lexipro....

This was all a nightmere..I never heard of this and began researching on the internet which frightened me even more....Being away from my daughter while she continued to push herself to get up and go to work was hard for me. Not to be near her so that i can take care of her....I have to say....Being that we took her to Columbia presbytarian in the city the care she recieved from Dr Warner and Dr Basil was so uncompassionate and uncaring....It was only when they prescibed medicine for her that caused her to get convulsions that i left and found Dr Sethi from weil cornell in the city. Dr sethi is not only intelligent but has been compassionate and caring......

This illness kills me a little bit everyday.....Watching my daughter suffer ...Is a pain i cannot descibe.....The fact that i cannot fix this is my biggest struggle.....I pray and hope that one day there will be a cure to this horriffic illness.....

My husband and i have been blessed with two daughters, my younger daughter jessica has been such a source of strenght through this...And watching my daughter Jennifer deal with this illness just proves to my husband and I how truely amazing she is.

Why this happened to us will always be an unknown.....There have been times of such despair through this....And i know i have to be strong for my daughter to get through this everyday....Until the day she is restored with good health. And i have to hold on to that hope....We are all in this together....May all the people who have been diagnosed with narcolepsy/cataplexy be blessed with a cure.

Comments for May All The People Who Have Been Diagnosed With Cataplexy Be Blessed With A Cure

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Feb 27, 2013
You are not alone
by: Tay

Thank you for your heartfelt story. Sadly, I am also a mother of a narcoleptic with cataplexy... only difference is that my child is only 7. She was diagnosed with severe narc and cataplexy at the age of 5. It's been a difficult journey and we've mourned the life she's lost - so much potential that may never be realized. It breaks my heart. You can read my story here at "end your sleep deprivation" at this link:

Good luck to your daughter Jennifer. She is very lucky to have such a devoted mother and sister.

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The Zeo

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Sleep Paralysis: A Dreamer's Guide

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Ever woken up paralyzed? A surprising number of us have, believe it or not. But few know the actual causes of this phenomenon, and fewer still how to exert control over it. Dream researcher and sleep paralysis expert Ryan Hurd shares breakthrough insights into how to do just that.

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