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My Fiance Runs Around Asleep

My fiance has yet to go to the doctors to be diagnosed, though he promises me he will go this week! I believe he has REM Sleep Behaviour Disorder (RBD), but I guess it could be a few different things, including some kind of nocturnal seizure. He is 28 years old and says he has always had the problem.


How does this affect him?
Often, he is not aware that he has been active in the night and therefore does not remember it. Often, he may wake up in the morning and still feel tired. Mostly, it is me who is aware that something has happened.

He woke up recently, though, after running into a wall. He hit his face. I hadn't woken up until then. I found him on the floor tangled up in the duvet, holding his head. He thought in his half-dreaming state that he had broken his nose, but he hadn't. He had mild concussion. That gave him headaches, but didn't stop him from going to work and cycling.

He has also woken up to find himself on the floor, cold, because there's no duvet there. He says that as a kid he stayed over in a bunk bed - top bunk - and leapt out in his sleep. He had actually forgotten about it until someone said, "Did you hear that crash in the night?" "Oh yes, that was me."

I can usually intervene (though my job means I am not home every night). I am usually awakened by him sitting straight up and he often speaks, hurriedly. He usually sounds panicky, like he has to get away from something. He often makes a move to get out of bed and so I speak to him, tell him he's in bed, put my arms around him in a bear hug and tell him to wait until I can get the light on, that it's not safe to move. Once I get the light on, he looks around. I tell him he's okay and to go 'back to sleep'. I show him where his pillow is. He settles down. He doesn't usually remember anything, so I guess he never really woke up.

Last night, though, in the middle of the bear hug, he said "I can't wait. I'm going!" and he made a leap to get out of bed. I hugged him again. Luckily he did stop. I was able to put the light on, which helped him go back to sleep. That was the second time that night and it was twice the night before - so right now it feels like my sleep disorder!

He has also hit me a couple of times accidentally, with flailing limbs. He knocked my elbow so I effectively punched myself in the chin and scratched my chin with my engagement ring.

His father has the same sleep disorder (also undiagnosed) and uses a torch by his bed to orientate himself. His grandfather also apparently had the same thing. There is no history of Parkinsons - which I read RBD can be a precursor to - and he does not drink much alcohol (2-4 units maybe three times a week). He is extremely fit, active, normal body weight, eats healthily. No other health problems.

The main way his disorder affects me is that I lose sleep acting as his bodyguard! Also, it is not fun being hit when you're trying to sleep! But the biggest thing is that I do worry about him seriously hurting himself - especially when I am not there to intervene or I'm in a deep sleep. I am especially concerned about the stairs. So hopefully he will go to the doctors and get referred to a neurologist/ sleep specialist. I'm hopeful that with the right medication, things can get better.

Comments for My Fiance Runs Around Asleep

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Jun 29, 2011
Update
by: Anonymous

1) My fiance is still waiting to be referred to Neurology. The GP admitted that he'd never heard of RBD and we did our best to explain what we thought it was.

2) In the meantime, desperate for a decent night's sleep, my fiance has tried melatonin tablets, which seem effective. 3mg reduces movement during REM, without stopping it entirely. Now trying 6mg per night. My fiance says that he feels more rested and has noticed an improvement in his cogitive abilities, which before felt foggy due to tiredness. He also seems to think that he has greater stamina cycling.

3) We have since learned that the grandfather who seemingly also had RBD *did* develop Parkinson's Disease, so this is something to watch out for.

Oct 18, 2011
What Works
by: Kay

I am sure I have the same thing and have tried many medications to try to tone down my violent dreams. OTC antihistmaines work fairly well as long as I don't take them more than once or twice a week. Melatonin and 5HTP both make the dreams worse! Dilantin and Lamactil both worked but I stopped taking them (shouldn't have). Tegretol also probably worked but made me very itchy.

I am excited to find this site and look forward to trying some new meds and finally getting some decent sleep!

Jan 23, 2012
sleepless wife NEW
by: fv2009

Hello Anonymous - It was so interesting to read your story as my 31 year old husband and I appear to be struggling with the exact same problem. He sits up, jumps out of bed, kicks and thrashes, and has hit me hard in the ribs for no apparent reason (not during an episode of thrashing around). He talks as if panicked, and "acts out" things as if he is reacting to something that isn't really there. Reading your story was like reading my own words.

I am curious as to what you found out from the neurologist and/or sleep lab? My husband is presently awaiting evaluation at a sleep lab as well. I’m very concerned about all this, as his father developed Parkinson's Disease at an early age and also has had a history of sleep problems.

Jan 23, 2012
sleepless wife NEW
by: fv2009

Hello Anonymous - It was so interesting to read your story as my 31 year old husband and I appear to be struggling with the exact same problem. He sits up, jumps out of bed, kicks and thrashes, and has hit me hard in the ribs for no apparent reason (not during an episode of thrashing around). He talks as if panicked, and "acts out" things as if he is reacting to something that isn't really there. Reading your story was like reading my own words.

I am curious as to what you found out from the neurologist and/or sleep lab? My husband is presently awaiting evaluation at a sleep lab as well. I’m very concerned about all this, as his father developed Parkinson's Disease at an early age and also has had a history of sleep problems.

Mar 13, 2016
HOW I GOT CURED FROM PARKINSON'S DISEASE NEW
by: Anonymous

(MUST READ: HOW I GOT CURED FROM PARKINSON'S DISEASE)
I am Austin, I was diagnosed of Parkinson's disease in November 2014. I was given medications like levodopa to slow down the progress of the disease. I suffered from this disease till my wife's co worker told my wife about a herbal doctor from Johannesburg, South Africa, who sells herbal medicines to cure all kinds of diseases including Parkinson's disease. We contacted this herbal doctor via his email and bought the Parkinson's disease herbal medicine from him. He sent it to me through courier service and i received it within 6 days. i applied it as instructed and was totally cured of the disease within 20-22 days of usage, all thanks to Dr Ejiro Mapipa. Contact him via his email, mapipaherbalclinic@gmail.com or call his mobile number on +27617403481 Goodluck.

Jun 03, 2016
How i got cured from parkinson's disease NEW
by: Anonymous

Greetings to every one reading my testimony, my name is Michelle Parker from the united state of America, i suffered from parkinson's disease since 2005 and visited so many medical doctors for a solution but all their effort was in vain as they where unable to come up with the solution to my sickness, i was so confused and never thought of been happy again ever in life,but one day i read a testimony like this about a herbal doctor from South Africa called DR Lusanda on how he help various people with various problems by giving them solution to their problem and also has the herbal cure for parkinson disease with his herbal medicine and i contacted the great man Dr Lusanda and tell him my name and my problem,he wrote me back and ask me to worry no more that my problem has come to its final solution, this man prepared me a herbal medicine and send to me via DHL and gave me instructions on how to apply it and assured me i will be cured within 18-20 days to my greatest surprises i only applied the medicine for just 14days and i was was cured. you can also contact him and get cured from parkinson disease, contact him via his email. drlusandaherbal@gmail.com or website on www.drlusandaherbal.weebly.com Thanks.

Jul 20, 2016
CURED WITH NATURAL ROOTS AND HERBS NEW
by: Anonymous

Hello Everyone, I want to share my testimonies to the general public on how this great man called Dr Lusanda made me happy. I have been suffering from Parkinson's disease for 3 year and i had been receiving treatment from my doctor. A day came when i was searching for information about this deadly disease when i saw a testimony of a lady who was cured from HERPS SIPHILIS-2 by dr. Lusanda, she also gave an email address on how to contact this doctor and advise we should contact him for any sickness that he would be of help, so I wrote to Dr Lusanda telling him about my (Parkinson's disease) he told me not to worry that i was going to be cured!! hmm I never believed him, well after all the procedures and remedy given to me by this man. Few weeks later I started experiencing changes all over me as the Dr assured me that I have been cured, after some time I went to my doctor to confirm if I have be finally healed behold i was told i have fully recovered.if you are there surfing from this deadly Parkinson's disease or any other diseases i will advice you to contact him on his working email: drlusandaherbal@gmail.com or website on www.drlusandaherbal.weebly.com i assure you that he will help you just as he did for me.

Aug 02, 2016
CURED WITH NATURAL ROOTS AND HERBS NEW
by: Anonymous

Hello Everyone, I want to share my testimonies to the general public on how this great man called Dr Lusanda made me happy. I have been suffering from Parkinson's disease for 3 year and i had been receiving treatment from my doctor. A day came when i was searching for information about this deadly disease when i saw a testimony of a lady who was cured from HERPS SIPHILIS-2 by dr. Lusanda, she also gave an email address on how to contact this doctor and advise we should contact him for any sickness that he would be of help, so I wrote to Dr Lusanda telling him about my (Parkinson's disease) he told me not to worry that i was going to be cured!! hmm I never believed him, well after all the procedures and remedy given to me by this man. Few weeks later I started experiencing changes all over me as the Dr assured me that I have been cured, after some time I went to my doctor to confirm if I have be finally healed behold i was told i have fully recovered.if you are there surfing from this deadly Parkinson's disease or any other diseases i will advice you to contact him on his working email: drlusandaherbal(AT)gmail(DOT)com or website on www(DOT)drlusandaherbal(DOT)weebly(DOT)com i assure you that he will help you just as he did for me.

Aug 31, 2016
i was totally cured NEW
by: peek


Good day everybody.....,
Am Peek Thomas from Belguim, live in USA,please I want the whole world to help thank Dr MAPIPA for saving my life. I thought my life has come to an end but I never knew i can be free from COPD and HERPES (HSV-2) . I have really gone through pains but thank God that today I am celebrating.
. I want to share this great testimony with you on how i met a great herbal doctor who helped to get rid of COPD and Herpes. In 2012 I was tested herpes positive and 2014 diagnosed of COPD ever since then I have been taking my medications but I was still troubled and unhappy until I met this great herbal doctor DR MAPIPA, though I never believe in herbal medicine before. I saw many testimonies on how he cured deadly diseases. I contacted him through his email;drmapipaherbalmedicinehome(at)gmail(dot)com and website www(dot)drmapipaherbal(dot)weebly(dot)com, he replied and asked me to send him my information,after that i purchased the herbal medicine,then he sent the herbal medicine to me through courier service,when i received the herbal medicine, I used it as he instructed. 30days later he asked me to go for check up, when I did the check up I was tested herpes Negative and COPD free, I am so happy, and I can not stop thanking him, I am going to live the rest of my life in joy and happiness.please this testimony is real ..
Best Regard

Peek thomas.

Sep 21, 2016
CURED FROM P/D NEW
by: Anonymous

My name Kamren Hamrick from Atlanta, Georgia,United States ...Parkinson disease has been ongoing in my family for long..I lost both parents to Parkinson and it is so much pain have not been able to get over. As we all know medically,there is no solution or cure for Parkinson disease and the cost for Medication is very expensive..Someone introduced me to a herbal doctor(Native Medical Practitioner)in GA..I showed the man all my Tests and Results and i told him i have already diagnosed with Parkinson disease and i have spent thousands of dollars on medication..I said i will like to try him cos someone introduced me to him..He asked me sorts of questions and i answered him correctly..To cut the story short,He gave me some medicinal herbs and he instructed me on how to apply theml..At first i was skeptical but i just gave it a try..I was on his Medication for 2 weeks and i used the herbs according to his prescription..i decided to visit my doctor for another test..Honestly speaking, i never believe all he was saying until after the test when my doctor mention the statement that am Parkinson disease negative and my doctor was shocked as well....If you are out there suffering from this deadly disease you can also contact him via email: drlusandaherbal@gmail.com or website on www.drlusandaherbal.weebly.com thanks

Sep 21, 2016
CURED FROM P/D NEW
by: Anonymous

My name Kamren Hamrick from Atlanta, Georgia,United States ...Parkinson disease has been ongoing in my family for long..I lost both parents to Parkinson and it is so much pain have not been able to get over. As we all know medically,there is no solution or cure for Parkinson disease and the cost for Medication is very expensive..Someone introduced me to a herbal doctor(Native Medical Practitioner)in GA..I showed the man all my Tests and Results and i told him i have already diagnosed with Parkinson disease and i have spent thousands of dollars on medication..I said i will like to try him cos someone introduced me to him..He asked me sorts of questions and i answered him correctly..To cut the story short,He gave me some medicinal herbs and he instructed me on how to apply theml..At first i was skeptical but i just gave it a try..I was on his Medication for 2 weeks and i used the herbs according to his prescription..i decided to visit my doctor for another test..Honestly speaking, i never believe all he was saying until after the test when my doctor mention the statement that am Parkinson disease negative and my doctor was shocked as well....If you are out there suffering from this deadly disease you can also contact him via email: drlusandaherbal(AT)gmail(dot)com or website on www(dot)drlusandaherbal(dot)weebly(dot)com thanks

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