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Narcolepsy Nightmare

by Jason

Hello, what a great website. Thanks to others who have posted their stories.

My life is a daily struggle with a narcolepsy nightmare. I hoped when I started medication life would get easier. It has but at same time it has not.

About 8 years ago I had to stop working due to other health problems. EDS ( excessive daytime sleepyness) highjacked my life with frightening serverety. I was diognosed with OSA (obstructive sleep apnea) 130 apneas a hour. Was prescribed a CPAP machine. My apneas (AHI) Index went into normal range. EDS was getting worst.

After 3 years of being u Dre care ENT consultants. Was offered no relief, answered, solutions. My G.P prescribed MODAFINAL only because I asked. Had become suicidal ( this was about 3 years ago) I'm not suicidal now, EDS EASED. But withn a year it was back. ENT doctor fettered me too neouroligist. Why I was not referred years earlier. Or referred was sleep studies I don't know. Soon seen neouroligist. He ordered sleep studies. Was on waiting list for 1 year ( I'm in UK). Chased appointment found out would need too stop taking modafinal for sleep studies. Explained i can't. Won't go back to how I was when unmedicated
Soon neouroligist prescribed Dexamphetamine 3 tablets a day. A year ago. I'm up too 55mg dex a day. And 400mg modafinal. I'm still sleepy. Get random sleep attacks. Seem too have mild cataplexy which neouro decides to ignore.

Soon much I want too do in life. Assess too medical help frastratenly takes time. G.p admits this out of her area of expertise. Neouro consultant, too see him g.p must refer me. Not possible too phone speak too him. He's too busy. Lack of support makes everything worst. Eventually so frustrated I'm just going to blow. And dem and help. Shouldn't have too be like this. Narcolepsy symptoms are bad enough. The Doctors who are meant to help actually aint helping. Don't know where I go from here.

-Jason, uk

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Welcome! This site is continuously being created by students of Dr. William C. Dement's Sleep And Dreams course at Stanford University.

We made this site as a call to action for people all over the world to live healthier, happier, safer, and more productive lives by learning about their own sleep. We have faith that reading the information provided on this site will motivate you to be smart about your sleep deprivation and strategic about your alertness in order to live life to your fullest, most energetic potential.

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The Stanford Sleep Book

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Dr. Dement's pioneering textbook has been the core text for Sleep and Dreams since 1980, but it has just recently been made available to the wider public for the first time.

In it you'll find a more detailed account of the most important things you need to know about sleep, alertness, dreams, and sleep disorders. Studies, statistics, plus plenty of Dr. Dement's classic anecdotes painting the history of sleep medicine.

Preface | Intro | Contents | Get A Copy

More Sleep Resources

The Zeo

A revolution in personal sleep tracking, the Zeo is a wireless headband that transmits your brainwaves in realtime to a dock (pictured here) or your smartphone. The result? You can wake up and see exactly what stages of sleep you were in during the night! Unprecedented personalized sleep knowledge.

Sleep Paralysis: A Dreamer's Guide

Sleep Paralysis Treatment Book

Ever woken up paralyzed? A surprising number of us have, believe it or not. But few know the actual causes of this phenomenon, and fewer still how to exert control over it. Dream researcher and sleep paralysis expert Ryan Hurd shares breakthrough insights into how to do just that.

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