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Narcolepsy with Cataplexy Started In Older Age - Know A Doctor In Fort Worth, TX?

by Ms, Jerry Nell Sipes
(Abilene, Tx, USA)

I was diagnosed in Sept of 2012 with narcolepsy with cataplexy after being tested at a sleep lab. I live in Abilene, Tx. which is in far West Texas about 3+ hours drive from Fort Worth or Dallas, Tx.

There is only one sleep disorder doctor that is certified in Narcolepsy here. I am taking 20 mg of Ritalin SR and 25 mg of Imipram. It has been almost 3 months on these drugs and I can't sleep at night...I could sleep all day even taking the Ritalin. I am sleep deprived. My sleep doctor told me she didn't believe in giving drugs to make me sleep and drugs to wake me up. I am 74 years old and feel I am going to die an early death if I can't get some REAL sleep. This doctor only has a total of 10 patients with Narcolepsy.

I went to another Dr. here in town thinking he would be able to help me as he has a sleep lab at the other Hospital in town only to find out he isn't a certified narcolepsy doctor and can't prescribe Ritalin. He only sees 4 or 5 narcolepsy patients a year. All of them did not have cataplexy and he said he doesn't know how to treat cataplexy. He is going to try and contact a doctor in the Ft. Worth/Dallas area for me. I can't drive that far and would have to try to find someone to drive me.

Do you have a name of a narcolepsy doctor in Ft. Worth, Tx. that can help me????????? It's closer than Dallas by an hour.

I am too old to have this disease and know I didn't have it in the year 2000. It came on slowly since then and if I had not collapsed with cataplexy I still wouldn't have known that I have it.....

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