SIx-Plus Years Of Sleep Apnea And Surgeries

by Kara
(Vermont)

My son has had sleep apnea since 3 months old. He has had five surgeries on adenoids that keep growing back. The most recent ENT we saw a few months ago says that his sleep apnea has nothing to do with his regrowing adenoids and all to do with his enlarged tongue.

The ENT also stated that as we are narrowing our choices for treatments, if the current c-pap treatment doesn't work, we need to look at a trachostomy (doctor's first choice) or tongue surgery. The doctor also stated that our son's behavior problems may have nothing to do with his sleep deprivation and that we should get a psych eval on him. We did this in the past and the psychologist stated it was our son's sleep deprivation causing the severe moodiness and behavior problems.

I'm nervous that the c-pap is not working. School starts in a couple of weeks and our son (1st grade) hates school and gets in trouble a lot (has 1:1 para with him all day). I am overwhelmed and losing hope on answers. Do you have any recommendations on any of the information I have supplied here?

Thanks for your help. Should we get a second opinion from the ENT report I gave you here?

Enjoy this page? Please help us pay it forward to others who would find it valuable by Liking, Sharing, Tweeting, Stumbling, and/or Voting below.